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Breaking Bad News

Paul Gross

Bad news is like a lump of red-hot coal that lands in your palm--and that you can't let go of, no matter how badly you'd like to.

I was tossed the burning coal over twenty years ago, when I was thirty years old and fit as a fiddle. Or so I thought. I also happened to be a first-year medical student, having my head filled with facts large and small about the human body.

Then something started to go wrong.

The first inkling came when I had to excuse myself from a two-hour seminar because of a sudden urge to pee. No big deal...and yet something about its urgency bothered me. The next time the seminar met, I took the precaution of urinating beforehand.

It didn't help. The same painless urgency interrupted the session once more. What was up?

Before long, I found myself using bathrooms a lot--in fact, more often than anyone I'd ever met. Within weeks, a one-hour class exceeded my endurance. So did the bus ride to school. And I certainly couldn't make it through the night.

Then the thirst began. A raging, playground-in-the-summer thirst that had me running back and forth from my desk to the kitchen, filling tumbler after tumbler with water or orange juice as I tried to study anatomy.

Clever fellow, I wondered whether it was the drinking that was causing the peeing. One night, to see what would happen, I went to bed thirsty. It didn't help.

Nowadays, as a doctor, I know that such symptoms mean only one thing. But back then, I couldn't assemble the disjointed facts I was learning into a clear picture. I assumed there could be a million causes for my symptoms, most of them treatable.

There was one piece of inside information that I chose to ignore as it flitted in and out of awareness: a cousin in his early twenties who'd developed an unquenchable thirst during a car trip--and landed in a doctor's office, where he was handed a diagnosis of diabetes, juvenile onset, and put on insulin right away.

When I thought about my unfortunate cousin, I wondered whether he had to inject the insulin directly into his veins, like a drug addict.

Luckily for me, I knew that I couldn't have diabetes.

How did I know? Because I was healthy. How could a person as healthy as me have diabetes? The logic seemed airtight.

The night that I had to use the bathroom five times, I finally decided to see a doctor. For some reason those five visits exceeded a critical threshold and convinced me that I needed help.

I had the good fortune to be covered under a student health plan whose office was in a red-brick building a few blocks from campus. An elevator took me up to a hallway, then I entered a waiting room.

Behind a sliding-glass window sat a graying secretary named Gladys, who greeted me and told me the doctor wasn't in. But after hearing my story, she made a call and described my symptoms over the phone. She listened, nodded and hung up.

"The doctor wants you to leave us a blood sample and come back tomorrow," she said.

The next day, I returned to the brick building filled with hopeful anticipation, like a pilgrim in search of salvation--or a patient fully expecting a cure.

I entered the small, empty waiting room. Gladys looked up from the open sliding window. And that's when it happened. Before I could sit down or even register the look of concern on her face.

"Oh, Paul," she said. "The doctor's not here again today; she wants you to see a physician downstairs. It looks like you have a problem with diabetes."

There it was. In my palm. The burning coal. Hot. Searing.

Ouch.

After leaving the building, I made a woeful, shell-shocked telephone call to my girlfriend. Together we tried to process this bombshell.

A few days later I was hospitalized, learning how to inject myself with insulin (I did not, thankfully, need to hit a vein, just pierce the skin) and how to test my own blood sugar. I began to contemplate my new life--totally dependent for survival upon insulin, syringes and blood-testing gadgetry.

All of that made me sad. But the thing that stung most was the way I'd been told the news. I felt angry at Gladys, though I later came to know her as a nice person who'd been thrust into a role she wasn't trained to play. I felt mad at the invisible Dr. X, who'd diagnosed and discharged me through an intermediary. Finally, I felt mad at myself because I might have complained, but never did.

Now, twenty-five years later, I'm a physician who on occasion delivers bad news to patients. Sometimes it's really bad, like cancer. Sometimes it's emotionally devastating, like a sexually transmitted infection in someone who believed that her partner was faithful.

Oddly, I like being the one to give the news. Not because I enjoy inflicting pain. Rather, it's a form of repair. It's a chance to rewind the clock and imagine someone taking care of me the way I wish a real doctor had.

Because of my experience, I know the impact of bad news badly delivered. And I know how long the memory lingers.

When I teach residents how to deliver bad news, I think of a cookbook recipe. Close the curtain or door. Make sure everyone is seated. Ask the patient what he or she thinks might be causing the symptoms in question. And then, making eye contact, say some version of, "I'm afraid I have some bad news to share with you..." If it feels right, touch the patient with a comforting hand.

Then comes the most difficult part: Say nothing. Wait for whatever comes. Silence. Tears. Or an impatient "So what do we do next?"

Teaching residents how to break bad news isn't much of a stretch for me. All I need to do is remember what it felt like--and what I myself wished for--when someone tossed me the burning coal.


About the author:

Paul Gross is founding editor of Pulse--voices from the heart of medicine.

Story editor:

Diane Guernsey

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Comments:
April 27, 2009
Interesting and poignant story. My observation from many years of nursing has been that the physicians who have experienced a medical problem firsthand are almost always more empthatic and sensitive in their interactions with their patients.
Posted By: peg
 
April 27, 2009
Thank you for this piece, Paul. Your patients are lucky to have you.
Posted By: Abby Caplin, MD
 
April 25, 2009
Thanks for this refreshing piece Dr. Paul. I went into medicine as a Physician Assistant partly because I knew I could treat people more humanely than I personally had been treated during the illness and subsequent death of our son, when we were dismissed as hysterical parents. It is good to see you passing along your wisdom. I have tried to do likewise. Bob
Posted By: Bob
 
April 25, 2009
MAny thanks for this Paul. Beautifully crafted and you make a powerful point with your own story. Glad the bladder is much more under control these days!
Posted By: David Greenshields
 
April 25, 2009
Beautifully told, and great image. You are right that the way those words hit us stays with us always. I am glad you are teaching residents!
Posted By: martina
 
April 24, 2009
My daughter Jenny has told me about you. She admires you and your work with PULSE. I can see in this piece why that's true.
Posted By: Patricia Reckrey
 
April 24, 2009
Nice piece, Paul. We struggle daily trying to teach our residents how to handle this difficult and essential task of our profession.
Posted By: Rick Flinders
 
April 24, 2009
What a terrific piece. Thank you for this.
Posted By: Barry Thompson
 
April 24, 2009
Great piece! Delivering bad news well is part of the art of medicine. I'm sure your residents benefit from your experience and sensitivity.
Posted By: Sandy
 
April 24, 2009
What a great comfort to know that docs such as yourself are teaching! Beautiful job, Paul. Many thanks.
Posted By: Pam Mitchell, RN
 
April 24, 2009
We all remember those moments, which ever side of the information we are on. And the difficult part - to stay silent and wait for what may come. So important. Thank you. MAM
Posted By: Muriel Murch
 
April 24, 2009
When we were told our daughter had encephalitis, we were handed that piece of coal. 38 years later, she's fine. But the scars are always there. I will never forget getting that news. Thank you for that touching piece.
Posted By: Sarita
 
April 24, 2009
Paul I really enjoyed this story and love the metaphor. JEFF
Posted By: Jeffrey R Steinbauer
 
April 24, 2009
I really enjoyed this piece. Clear, crisp and right on. thanks Larry
Posted By:
 
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